Terms and conditions


Self Help UK Privacy Statement

Self Help UK (SHUK) collects details about people using our services in order to provide them with the support they require. We are committed to ensuring the safeguarding of the information provided to us and issue this statement to ensure transparency.

The type of personal information we collect

We currently collect and process the following information:

  • Personal identifiers, contacts and characteristics of clients who wish to receive support from Self Help UK – either as part of a peer support group or network or as a client of the Macmillan Beyond Diagnosis Gateway which may include some or all of the following:
    • Name, address, contact phone number and email address
    • Next of kin details
    • Age, gender, ethnicity, sexuality, disability
    • NHS number and cancer diagnosis (Macmillan service only)
    • Notes about the contact we have had with you and the support we have provided you with.

How we get the personal information and why we have it

Most of the personal information we process is provided to us directly by you, for one of the following reasons:

  • To provide a support service to you
  • To provide you with information and/or newsletters
  • To enable us to notify someone in the case of emergency
  • To enable appropriate communication with NHS staff where required.
  • To support matching of service users and volunteers where age, gender, ethnic background, language, sexuality or location is of importance.

We also receive personal information indirectly, from the following sources in the following scenarios:

  • Referring agencies into the Macmillan service  –we check that the referrer has permission to share your personal details.

Identifiable information held by SHUK will only be shared with a third party with express permission of the individual unless relating to criminal activity or a medical emergency.

With permission, personal information may be shared with volunteers who will be supporting you, health or social care organisations or other services where you have agreed for a referral to be made.

Your information may also be collected and analysed by SHUK for purposes of service improvement, providing evidence to funding organisations or sharing with organisations for the improvement of cancer services locally and nationally. All data used for these purposes is provided anonymously and cannot be traced back to any individual. (e.g. how many people from different ethnic backgrounds we have supported in a year)

Under the General Data Protection Regulation (GDPR), the lawful bases we rely on for processing this information are

Your consent. You are able to remove your consent at any time. You can do this by contacting Self Help UK – 0115 9111662 or the information officer directly – [email protected].

How we store your personal information

Your information is securely stored on a designated Self Help UK section of

 Lamplight, a database which can only be accessed by employees of Self Help UK using individual log in names and passwords. We keep all records relating to individuals we have supported for up to 7 years

We will then dispose your information by deleting your records from the database. Data relating to your personal characteristics will still be stored in anonymous format within our secure server.

Your data protection rights

Under data protection law, you have rights including:

Your right of access - You have the right to ask us for copies of your personal information.

Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances.

Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances.

Your right to object to processing - You have the the right to object to the processing of your personal information in certain circumstances.

Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.

Please contact us at the contact details below if you wish to make a request.

Our contact details

Name: Self Help UK

Address: 21-23 Pelham Road. Nottingham NG5 1AP

Phone Number: 0115 9111662

E-mail: [email protected]

How to complain

If you have any concerns about our use of your personal information, you can make a complaint to us by contacting the Data protection lead

Cath Cameron-Jones

[email protected]


You can also complain to the ICO if you are unhappy with how we have used your data.

The ICO’s address:           

Information Commissioner’s Office

Wycliffe House

Water Lane




Helpline number: 0303 123 1113

ICO website: https://www.ico.org.uk

View our privacy statement here

Linking Policy

It is not necessary to request permission to link to this website however we do reserve the right to request removal of any link. A link to this website does not imply endorsement by Self Help UK and your site must not conflict with our aims and values.

On this website are links to other sites, which we believe will be useful or of interest to users. If you are a member of a local self help group or work for a self help agency, we can provide information and a link to your website.


This site uses cookies. Cookies are small text files that are stored on your computer by the websites you visit. These are used to track usage and to help websites work more efficiently. However, no personal data is collected and your privacy is protected. By continuing to browse this site you are accepting the use of cookies for the duration of your visit.

First Party Cookies

Creates a php session for each user, also used when members login/logout. Essential function – no personal data is collected .

Part of the security system used to screen a visitors against a known list of threats. Essential function – no personal data is collected.

Security system for form submissions. Search forms and contact forms will not function without this. Essential function – no personal data is collected.

Used to track logging-in and logging-out. Essential function – no personal data is collected.

Used to register last visit for updated content - no personal data is collected.

Used to track which pages have been visited to help with our website maintenance, Essential function – no personal data is collected.

Used in the 'add to my list' website feature. Without this you cannot save items or edit your list. Essential function – no personal data is collected.

3rd Party Cookies

We use Google Analytics to track usage and improve the website - no personal data is collected.

Google Analytics Cookies

If you would like to know more, please contact the Information and Communication's service, by filling out our online form.

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